Workshops

Monday, September 16

Drifts and Shifts: Monitoring Changes in the Social License for Research Using Health Data — FULL

The workshop aims to familiarize participants with social licence concepts, current evaluation methods, and prioritize areas for research. It emphasizes the importance of continuous monitoring to maintain community trust in data usage. Expected outcomes include knowledge enhancement, priority setting, and collaboration opportunities. Targeted at consumer involvement and data linkage professionals.

Live Research Dialogue on the Benefits, Costs, and Utility of Synthetic Data for Researchers

Join us to explore how the availability of synthetic data can affect researchers.  Hear the perspectives of data owners and processors, and the public. Breakout groups will unpack what characteristics of synthetic data make it useful (or not), and delve into the challenges of ethics, governance and pure practicalities of the routine provision of synthetic data for secure datasets. Be part of a live, international research project to influence opinion and practice on this fast-evolving complex topic.

Turning Research Ideas into Reality: A Guide to Developing a Simulated Research Protocol using Administrative Data

Participants will be guided through a plausible real-world research project using administrative data and explore what is possible to measure and analyze.  The objectives are: 1) demonstrate how to translate a research idea into an analytic protocol appropriate for administrative data research; and 2) foster discussion on practices for conducting administrative data research across jurisdictions.  The workshop will have three distinct parts: 1) group completion of analytic plan; 2) critically evaluate project feasibility; and 3) discussion on research governance.

Thursday, September 19

Developing Public Engagement Strategies for Administrative Data Research Studies

This workshop will introduce public engagement/involvement (PE/I) in the context of administrative data research studies. It is designed for researchers, project managers, and knowledge translation specialists. PE/I has become a valuable way to close the gap between the administrative data collected in health and social systems and the people whose lives and lived experiences are represented in the data. This workshop will help participants assess collaboration readiness, levels of engagement, and ways to tailor PE/I approaches to administrative data research.

Estimating Correlations and Causal Relationships with Linked Data Sources

This workshop consists of two key parts. The first delves into various record linkage algorithms, demonstrated through their implementation in statistical software. The second part focuses on addressing linkage errors in downstream analyses, covering methods, assumptions, and implementations. The downstream analyses would include exploratory analysis and estimation of causal and non-causal relationships. Adjustment methods will include statistical methods that are implemented during the linkage process (primary analysis) and those implemented when only the linked dataset is available (secondary analysis).

An Introduction to Data Visualization: Communicating Data with Efficacy and Elegance

Adapting to a changing world requires effective communication to realise the full potential of data to create meaningful societal impacts.  This workshop will introduce the principles of data visualisation and will focus on key aspects of the design process, drawing on expertise from a community of experts, and provide an overview of best practices and industry standards. Participants will gain knowledge to enable objective evaluations of data visualisation and have an opportunity to experience of typically unfamiliar artistic practises.

Leveraging Full Count Census Data through Record Linkage

Academic researchers in the U.S. and Canada have partnered with genealogical organizations and statistical agencies to create massive new data collections from census enumerations. By linking individuals and families across censuses, analysts can create national longitudinal panels linking individuals over their lives and families over multiple generations. The workshop will introduce the IPUMS and The Canadian Peoples data collections, explain how to access them, discuss challenges and opportunities of census linkage, and provide opportunities to consult with data experts.