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CAPriCORN: Mapping Population Health Across Chicago

The Chicago metropolitan area, often referred to as Chicagoland, spans three states and holds a population of over 9 million people. Being home to one of the most diverse populations in all the United States, Chicago and its suburbs naturally serve as a hub for researchers and their work. One such example is CAPriCORN, a patient-centered outcomes and research network, aiming to help people and their caregivers make better-informed decisions about their healthcare. CAPriCORN is led by 2024 IPDLN conference co-director, Abel Kho, MD, MS, FACMI, who serves as the network’s principal investigator. 

CAPriCORN is a partnership between healthcare and research institutions, patients, patient advocates, clinicians, community-based organizations, and non-profits, with a commitment to creating the most comprehensive and complete coverage of the health of Chicago’s population. CAPriCORN aligns with members of the community to focus on improving healthcare quality and health equity – a mission that has led to work in examining environmental effects on health and contributing to a myriad of public health efforts, one of which is tackling homelessness in the Chicago area. Addressing the data gaps in counting and tracking outcomes of those experiencing homelessness presents a unique challenge – but in linking data between regional health systems and homeless information systems, CAPriCORN researchers were able to demonstrate a collaboration that would prove crucial in addressing this hugely important social determinant of health. This work received funding from state leadership, and has been published in the American Journal of Public Health and BMC Public Health.  

Engaging in sustainable, population-level research, CAPriCORN’s infrastructure and processes allow the network to create high quality, de-duplicated data, all while elevating the voice of the patient in their research priorities.